Welcome to Money Diaries where we are tackling the ever-present taboo that is money. We’re asking real people how they spend their hard-earned money during a seven-day period — and we’re tracking every last penny.

This week: “I’m 36 and live with my husband in County Durham. I was doing research work, but the recent end of a fixed-term contract saw me move to an administrator role. I’m loving this, mainly due to the team, who are fantastic. I am still doing charity administration and have reduced these working hours. Since my last Money Diary, almost two years ago, I’ve been diagnosed with Multiple Sclerosis and have seen huge changes to daily life and the costs that come with disability. After a year of survival (which was not very pleasant), trying not to let the MS ‘win’, I’ve accepted my body has changed, and life needs to change with it. I’ve reduced some of my working hours, also travel less and have an additional afternoon off a week. I’ve also just changed treatment for greater stability, although I am considering another change to a pregnancy-safe option. My mum was also diagnosed with Parkinson’s Disease within a month of my own diagnosis (by the same consultant!). It’s been a rough time as a family and also personally with unpleasant symptoms, waiting on a diagnosis and accepting and adapting to a new reality. I’ve had a lot of anxiety and finally feel I’m getting to grips with the vulnerability I live with and accepting this without it making what already feels hard, harder. We’ve taken some financial hits with my diagnosis. We had to replace my car from manual to automatic (I have left leg fatigue and muscle weakness). Our shower also had to be replaced as I was not safe getting in and out of it. The plumber did a really poor job and we are now having to have this work done again. It’s beyond frustrating to see our savings being used like this. I’m just thankful that we have the savings to do this. Even if it isn’t what we want, it’s what we need.”

Occupation: Administrator
Industry: Higher Education
Age: 36
Location: County Durham
Salary: Approximately £20,000 across the two jobs, university and charity administration.
Paycheque Amount: Take home £841 and around £800 in the first month with reduced hours.
Number of housemates: One (husband, C).
Pronouns: She/her

Monthly Expenses

Housing costs: £187 (for my half of the mortgage).
Loan payments: I don’t earn enough to pay off my student loan.
Savings?: £200 a month into a savings account (approx £4,000 total). I also put £80 into my Monzo each month which is then split into pots for general spending e.g. date night.
Pension? I honestly have no clue how much I pay into my pensions. One of my jobs has just changed provider which has sparked conversations about combining them, but this needs some investigation. Whatever happens, I’m certain it’s not an amount that will look after me in the future! When salaries are needed for living, it’s hard to see the immediate value in increasing contributions. 
Utilities: We each put £800 each into a bills account which covers everything including mortgage, internet, water, gas/electricity, Netflix, council tax, life insurance, car insurance etc. Our food shopping, petrol and random house stuff also comes out of here. 
All other monthly payments: £16 SIM only.
Subscriptions: £60 annual meditation app, £150 weaving class membership, paid per term.

Did you participate in any form of higher education? If yes, how did you pay for it? 
I went to university for an undergraduate degree and I had a student loan and a maintenance loan. My parents supported me by covering my rent. I then did a Master’s degree a few years after being employed which I funded through savings, using inheritance and working as well. I then did a PhD, during which time I worked and lived at home where I contributed to the house approximately £200 a month. My parents saved this money and I was able to use it towards research expenses. 

Growing up, what kind of conversations did you have about money?
Growing up I was always encouraged to save. I remember trips to the local Building Society to deposit birthday and Christmas money, those were the days where everything was printed in a little book! 
In terms of education about finances, this was mainly through attitude and dinner table conversations. Be cautious, don’t overstretch, debt should always to be avoided. Fundamentally, don’t buy something if you could not afford it. 

If you have, when did you move out of your parents/guardians house?
I moved out when I was 18, then moved back when I was 25 and then moved out when I was 31. I’m very grateful to them, without them I would not have had some opportunities such as my PhD. 

At what age did you become financially responsible for yourself? Does anyone else cover any aspects of your financial life?
While I have been supported by some time living at home, including food and utilities, I have covered all of my other expenses since I left for university. Currently, C and I share living costs, although reducing my work hours and the impact of ill health has made me feel at risk of not being able to contribute my half of ‘life’. These conversations usually lead us back to the mantra: health over wealth. 

What was your first job and why did you get it?
I was 13 at the local newsagent’s on a weekend. I used to stack shelves and count coupons. I think I got about £2.50 an hour. I loved it! 

Do you worry about money now?
I do, although I try not to let this dominate. We are going through another round of redundancy at the university and my other role was re-evaluated, reducing my pay by £2 per hour (my current salary is protected until April 2026). To be honest, I’m looking for other opportunities all the time. Again, it’s a balance of what is possible versus what is good for me. Vulnerability has been a buzzword for me over the past year and I’m trying not to let the fear dominate. I’ve come to the conclusion that if we live within our means and look after our savings, we should be able to weather any storm?! 

Do you or have you ever received passive or inherited income?
I inherited £1,000 when my grandma died, and £3,000 when a close family member died. I used all of this on further education. I wanted to use it for something that was lasting. 

Day One

7:56 a.m. — Wake up just before my medication alarm. Go downstairs to make breakfast. Put washing up away which proves to be a mistake, my left leg is numb before I get back to bed. C usually does breakfast for us but I wanted to be helpful! 

10:50 a.m. — Go to B&Q to look at materials for the shower replacement. No spending today, just thinking about what we want and need. Who knew decisions would be so intense? At least there are plenty of perch points and loos to sit on! 

11:40 a.m. — Go to C’s parents’ place for lunch and catch up.

2:30 p.m. — C meets a friend for a drink and to play darts. I go home and put a load of washing on. I then pick up a book but end up napping. 

4:30 p.m. — Wake up and feel frustrated that I have not done anything I wanted to do with my afternoon. I’ve not done any crafting or gardening but reflect and decide I have listened to my body and valued rest. Channeling my Acceptance Commitment Therapy!

5:30 p.m. — C gets in and we have a picky tea. I was due to call a friend and watch Selling Sunset but just don’t have the energy. This feels frustrating, how can you not have the energy to watch TV?! I often think that fatigue is the worst symptom… I text my friend D and am thankful that she is understanding.

6:30 p.m. — My consultant and MS nurse say that exercise is key to fight fatigue but it’s so hard! But I decide I need to do something to feel good. I get on the exercise bike to move my legs.

7:30 p.m. — Sit down and catch up with Dragons’ Den. Debate if it’s too late for a drink, opt for a herbal tea.

9:30 p.m. — Intermittent Self Catheterisation (ISC), done! Thank you, C, for going above and beyond, holding mirrors and guiding me into the right hole. This should mean that I’m not up multiple times going to the loo at night. I never realised how much your central nervous system controls, as such, MS impacts everything! ISC should mean more rest and uninterrupted sleep. I’ve struggled with ISC and still not comfortable with it, to the point I avoid it. But I spoke to the bladder and bowel team again last week so I’m back to it. 

10:37 p.m. — Lights out after reading and going to the loo again. Frustrating!

Total: £0

Day Two

7:40 a.m. — C wakes me up with tea, chia seed pudding and medication. I was up another three times last night and disappointed as a result. Read and finish my book with breakfast in bed. 

8:20 a.m. — Shower and get ready to work from home.  

9 a.m. — Log on to my first job of the day! 

11:15 a.m. — Drive to my other job and listen to Permission to Rest. Get petrol on the way, £52.02.

2 p.m. — I have my soup for lunch in the back room and take some time to breathe deep. New computer systems are stressing volunteers and I’m the one that they share it all with! 

5:50 p.m. — Home and C has ravioli and garlic bread almost ready. We debrief our days and chat over dinner. 

6:30 p.m. — Call my parents, have a cuppa tea and watch some TV.

8 p.m. — Shower and do exercises for my weak leg. I can see it’s skinnier than the other side. Makes me feel lopsided.

9:50 p.m. — Three catheters later and still not comfortable. Really getting bored of this now. I’m feeling increasingly frustrated at my body, the weight I have gained, my inability to walk in a straight line and move like I used to. All of it. The six bourbon biscuits I had at work feed the self-pity. I’ll try to look back and review my gratitudes tomorrow morning. Certainly not happening now.

Total: £52.02

Day Three

6:10 a.m. — C brings breakfast to bed and wakes me up. Early start for work today as I’m on campus. Up once during the night. 

7:40 a.m. — C drops me at the station and my people watching window begins. I booked and paid for my train last week.

9:03 a.m. — Get the bus to campus and enjoy all the spring flowers which are lovely and colourful.

10:45 a.m. — It seems impossible to find a colour printer which works. I’m exhausted by the time I find one, along with a dumb and heavy left leg. I pass the campus supermarket and stop for essentials — Milka Tuc bar and Caramilk buttons, £3.19.

1:45 p.m. — Buttons are all gone! I enjoy being on campus and catching up with people over lunch.

4 p.m. — Afternoon of meetings and then leave for the bus, £5.20 for today’s total.

5:30 p.m. — C picks me up who is delayed by awful traffic. 

6:30 p.m. — C sorts dinner while I grab a shower. We spend the evening finishing Yellowstone.

9:45 p.m. — Bed with no ISC as I have none left and will wait for the nurse to visit and advise rather than order a prescription.  

Total: £8.39

Day Four

9 a.m. — I get to work early and have a quick look in Tesco. I get the eggs we needed, along with four bottles of barista oat milk currently on Club Card offer and some coffee sachets that C and his office husband enjoy, £7.10. I would usually put this on the joint account but I forgot my purse so I use my phone which does not have the right card on.

3:45 p.m. — We have new working hours so I enjoy getting home earlier. I have a cup of tea sat in the garden and do some deep breathing. I used to be quite active and enjoy the outdoors. Now I’m not able to do many of these activities. I’m accepting new ways of being outside and alongside nature. Outdoor tea breaks being one of them.

4:30 p.m. — I have a nap on the sofa.

6 p.m. — C gets dinner sorted and then we watch Love is Blind and the end of Political Thinking. 

7:30 p.m. — Get on the bike to move my legs and then take a shower.  

9:37 p.m. — I get some ironing done (I used to love ironing!). Now I have to leave half of it and do it knelt down as I can’t stand for any length of time.) I then clean my teeth and go to bed. No ISC tonight. Too tired and too disheartened after last night. 

Total: £7.10

Day Five

6:45 a.m. — C is up and I’m very awake this morning. Usually, I snooze for much longer. Breakfast in bed, read, get ready and to my desk.

9 a.m. — Start work for my university job. Review all the things people are trying to sell on the Slack group (always fascinating).

11 a.m. — Log on for my other job. I have new working hours which means I now do a few hours from home and work with less mental load surrounding me.

2 p.m. — After some lunch I treat myself to a hot chocolate in the garden. It feels good to have physical space but also mental space in the week.

3 p.m. — I make a few medical calls. I call the neuro day unit about a blood appointment I need and also call the bladder team again. Lots of success — bladder lady is coming to the house next week to support me and blood tests booked for the week after. When you need to book and chase things it does feel like being ill is a full-time job. Saying that, I’m very thankful for all the care and support I get. Every service I’ve been in touch has been fantastic and my MS nurse deserves a medal. She is a true rock and I dread to think what life would be like without her and the support she offers.

4:15 p.m. — I put the rice cooker on so it is ready for when C comes home.

5:30 p.m. — C and I have some days off together in a few weeks. I book a local five-star hotel for breakfast. Such a treat! It’s actually amazing value for the buffet and whatever you want off the menu along with drinks for only £15 – I book today but pay on the day. 

7:30 p.m. — Finally finish Selling Sunset with D. She is aboard but we stay connected by watching these types of shows together and nattering all the way through them! Love it! 

8:30 p.m. — I’m suddenly feeling very anxious but acknowledge that I’m very tired. I also can’t settle so C goes and get the icepacks out of the freezer. The weather is warmer which makes many of my MS symptoms, anxiety and pain worse. Icepacks go in the bottom of the bed to cool my feet and numb the pain. In summer this is standard routine, but we are out of the habit with the cooler seasons.

Total: £0

Day Six

8:30 a.m. — Order two cut and sew tea towels — they look so cool! They will be Easter gifts for friends who live elsewhere. Postage will be cheaper if they are flat?! Found them from an independent artist, £23.25.

9 a.m. — Log on and move electronic paper. 

12:20 p.m. — I go to the local hospice where I meet my parents and women from a recently diagnosed group. Mum gets my lunch, which is amazing value and always so good! Dad leaves and goes to my house. Today he is sowing some seeds! We’ve found this works best with mum’s medication and the various food and drink windows that she is restricted to.

1 p.m. — Tai Chi at the hospice. I love this practice and can already see a positive impact in my balance and the way I move. We all have a laugh and we all wobble a lot and have regular sit downs. This is also great exercise for my mum and she gets a lot from it too. Mum pays for both of us. Thank you, mum!

2:15 p.m. — From Tai Chi I make my way through the building to a clinic room where I have acupuncture. I pay £20 for the session which includes a £5 donation which I give when I feel I can. Accupuncture is a literal game-changer for me. It keeps my pain manageable and responds to all the other moving bits of life. I get teary thinking of the hospice. This space and the people help me live well. I’d be lost without their services. 

3:15 p.m. — Dad comes to pick mum up and they go back home. Usually mum and I would go to my house and we’d have a cup of tea in the remaining ‘window’ and catch up.

3:30 p.m. — I go to the hairdresser for a haircut — I want it all off my neck to help me keep cool. I sit there and have no idea where my words have gone. I’m not comfortable and I’m not happy, yet I’m struggling to say anything. I pay £59 for this awful experience.

5 p.m. — C comes in and I’m in tears about my hair. It’s not a bad cut, it’s just not what I wanted. I’m especially upset as I’m usually really assertive. I feel MS has stolen my voice. I pull myself together and call the salon to discuss how I feel. The conversation did not go well. I’m in tears again as I call around other options in town. 

8 p.m. — Early night. Realising doing so much this afternoon did not help the hair situation. Tai chi and the emotions were exhausting and of course, fed each other!

Total: £102.25

Day Seven  

8 a.m. — Wake up to medication alarm and C gets us breakfast and a cup of tea in bed. 

10 a.m. — I go and get the best haircut from the loveliest of all people. Faith in humanity restored, £15!  

11:30 a.m. — Mum and dad come over and I meet them down at the allotment. We had been on the waiting list for years and were offered a plot just a few weeks after my diagnosis. This gave me such hope that I am still able to do things, even if they aren’t massive hikes or outdoor adventures like I used to. It’s coming along very slowly, but nothing these days is a rush. C and dad move some manure while mum and I pull up some weeds around the 50 tulip bulbs I planted in autumn. This is a precious space and I am so thankful for it. 

3 p.m. — Mum and dad go home and I head to bed for a nap.

6:30 p.m. — We do it! After a long debate we celebrate the weekend with a Chinese takeaway. C pays. 

9:30 p.m. — After finishing Love is Blind we head to bed as I’m super tired after all the fresh air and emotion of haircut drama. 

Total: £15

The Breakdown

Food & Drink: £10.29
Clothes & Beauty: £74
Home & Health: £20
Entertainment: £0
Travel: £57.22
Other: £23.25

Total: £184.76

Conclusion

“No two weeks are the same, sometimes I spend more on train travel or a meal out with friends or even a supermarket food shop. I did pay for two haircuts though! I don’t think I have scope for any financial changes when there is so much vulnerability. But if I can carry on being sensible but feeling good, that’s okay!

This diary does not show the expense of disability, prescription costs, additional physiotherapy and the big-ticket items which come as a shock (like the bathroom). In the same breath, I am thankful for subsidised acupuncture and all the support from places like our local hospice. I am thankful to be able to work, even if this is different. The diary also does not show the emotional and energy costs of planning every journey and event, thinking about distance and impact. Saying no to things that you really want to do, reconciling this and processing change.”

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